On Friday, B.C. Health Minister Josie Osborne reiterated the province would end funding for the Brineura drug, a drug that cost $9 million a year and was only being used by one patient, nine-year-old Charleigh Pollock who suffers from the extremely rare Batten disease. Durhane Wong-Rieger, the CEO of the Canadian Organization for Rare Disorders, condemns the province for not using its federal money for rare disease sufferers to treat the child.
